I’m still waiting for my Neuro appointment which isn’t until August now. I’ve been waiting to get results from my MRI since March! How crazy is that. So I don’t know whether my AVM is still there or whether or not I need more radiation.
My loved ones are eager to get the results but it doesn’t matter to me. I’m not sure why. Whether it’s good or bad news, it doesn’t make much of a difference at this point in my life.
I’m starting to slowly do exercise again but I don’t think I’ll ever feel confident doing it. Like I’ve said before, I loved playing sports and being active but the thought of having a bleed made me stop all that. Literally every time I would exercise, I would get a seizure. The confidence is coming back slowly but I think the fear an AVM puts into to your mentality – that’s something which will remain. For me anyway.
Waiting. Waiting. I haven’t had a hospital visit in months which is very strange and relieving. I almost want something to happen so I can remember what it was like, how it felt. That’s an odd thing to say, I know. I just had forgetting what made me, molded me into the person I am today. It’s been such a huge part of my life (almost weekly doctors visits, the specialists, the eegs, the medication, the seizures, the paralysis, the brain cramps), I can’t imagine living without it. Weird.
Hope everyone is well.