Hi everyone,
First I’d like to say hi and thank you to everyone who responded to me a few months back. I joined this group before I had my first cerebral angiogram, and everyone here was super nice and informative. Back in February, I started hearing a constant, heartbeat-like whooshing sound (pulsatile tinnitus) in one ear. My doctors thought I may have a dural AVM, but as it turned out, I don’t. My “whoosh” is caused by something else, which has yet to be identified.
I’m writing here because I created a Web site at http://www.whooshers.com for, well, people who hear whooshing noises. Some of us have been diagnosed with dural AVM, bruits, FMDS, and a host of other causes. Some of us have yet to be adequately diagnosed. But ALL of us who hear the whoosh can relate to the confusion and anxiety of not knowing the cause at first and beginning the long (and often lonely) road to diagnosis. Not to mention the stress of dealing with a constant noise.
From what I have learned about dural AVMs, I realize that not everyone that has a dural AVM experiences (or has experienced) the whoosh. But since whooshing noises sometimes DO indicate a dural AVM, I would like to include some info about dural AVMs on Whooshers.com. A lot of users find my site and other sites because they google their symptoms (heartbeat in my ear, pulse in ear, etc.) and find out the possible causes that way. It helps them figure out what kind of doctor to see.
Specifically, I’m working on creating a list of online sound files and/or downloadable audio files that I can post so new “whooshers” can listen to them and maybe, just maybe, identify a whoosh file that sounds like theirs so they can play it for their families, their friends, and their doctors.
There may be sounds of other things that sound like dural avms. For example, my whooshing noise sounds identical to a heart murmur, but I don’t have a heart murmur. I’m posting that sound on the site solely for readers to identify something that sounds like what they hear so they can play it for others. Some describe their sound as like a washing machine, so I’m looking for audio of a washing machine sound, too. 
So here’s my question: if anyone reading this is or was a whoosher, do you have an audio file (or a link to one) of what a dural AVM sounds like? If so, or if you have any other info or comments you’d like to share, please email me at ■■■■■■■■■■■■■■■■■■■.
Thanks!