I was wondering how you would describe the whooshing sounds you hear,does it sound like blood rushing through your head?
Hi Patricia, yes I would say it sounds like that, I wish it would go, trying to get to sleep with that noise is painful or though I must admit I think after years I do seem to be used to it.
Stay strong and take care
DM
sounds you may have tinnitus. I didnt have that, until my third bleed. Very frustrating and annoying sometimes - like a whoosh, or sometimes high pitched noise.
Whooshing noises are known as a bruit and are common with a AVM... http://www.avmsurvivors.org/main/search/search?q=bruit
I do not know if this is the same thing since your AVM is located on the tongue.
that is what I was wondering if it could possibly coming from my tongue, but it is in the back of my head. i have had this for years, I have asked people if they can hear the blood running through thier heads, they think I'm crazy. My mri was only done on my tongue and face, I am worried maybe I should have one done on my head.I just had the one on my tongue diagnosed. Maybe it's nothing.
Hi, if I were you I would be pushing the matter with the doctors and getting head MRI done and checking out that noise because I can't see how it would come from your tongue.Maybe just get it double checked.
Stay strong and take care
DM
to me it sounded like water in my brain
Thanks everyone for your replies, I was just diagnosed with this in my tongue. I am just starting the process,I am going to request an mri on my whole head and go from there. It dosen't sound like there is much medical knowledge in Canada.
Patricia, I have seen a few posts about whooshing noises. I learned about carotid bruits in paramedic training. As blood passes through the vessels in our bodies it is usually silent. As we age, the plaque that sometimes builds up in the arteries in our neck begin to cause noisy turbulence. In PM school they taught us to listen to the neck of our older patients to detect a bruit. When I started hearing a bruit in my right ear at the tender age of 30 I knew something was not right. That is what led to the discovery of my DAVF. At first they called it an AVM, but now, 25 years later, they have sub-categorized these things. They are cousins with similar causes, but a dural AV fistula seems a bit less complex, even if more likely to bleed.
For those of you with ‘whooshes’, and who are adventuresome, try using a stethoscope to listen to various places on your head. If you hear any whooshing noise tell your doctor ASAP. Don’t be surprises if they are skeptical. One neurosurgeon asked me if I heard anything besides my bruit.
I asked him, "Like what?"
He said, “Like voices.” That is when I was reminded that 1 out of every 2 doctors graduated in the bottom half of his.her class.
My best to each of you. You are among the bravest and strongest people on the face of this earth!
FB
Thanks Fire Buddy,
My doctor took me serious, I think because of the avm in my tongue. He said the sound would not be coming from my tongue, so he ordered an mri of my head. He didn’t listen with a stethoscope. I am still waiting for my mri, there is quite a wait in Canada. Thanks for the info.