Hi, I think my AVM story is a bit different to a lot I read. Mine is, thankfully, so far unruptured and only discovered because of movement issues on the right side of my body. Because of its location it’s untreatable, which I’ve come to accept.
What I’m wondering is whether Covid poses any greater risk for someone with an AVM, particularly in terms of the fact that it can potentially affect blood vessels. I haven’t been under a neurologist for more than 15 years so can’t ask a neurologist. I could ask my GP but I’m not entirely sure they understand what an AVM is as they’re relatively unheard of condition.
Has anyone else had any info about the affect of Covid on cerebral AVMs?
Welcome Sophie. I haven’t heard too. much talk on this topic on the forum but certainly a questions that makes a lot of sense right now. I know they are wondering about some of the effects of COVID on clotting and circulation. The article I saw was some time ago and I think it was specific to feet for some reason. I am interested if anyone is aware of further info. Once again, welcome and Take Care, John.
Good question - I asked my neurosurgeons when I was in ICU upon release. They said to me, just when I’m fresh released to try not to get sick - since I was still recovering
As far as long term - well, it seems to be up for debate at this point.
My opinion is that one of the major symptoms of COVID is heavy coughing. Heavy coughing leads to higher head pressure - “we” don’t like high head pressure. “We” don’t necessarily have weakened immune systems.
I was/am quite worried from all my recent hospital stays & visits.
I have not seen any other research on this at all - but, that’s what I came up with myself - if it makes sense.
I know that back in March or April this subject came up and there was a whole strand of conversation around this. I’m sure that things are better understood than they were at the start of the pandemic and medical views may have changed but there was definitely something around people having cerebral palsy being more susceptible.
Hi all, thank for your replies. I get the feeling us AVMers seem to have slipped through the net a bit! But it’s not really surprising considering relatively little is still known about them, and they have such diverse affects on the people that have them. I’ve basically been self isolating anyway (working from home and getting online shopping deliveries) but I started volunteering at the weekends in my local community shop in October, which obviously increases contact. Will continue being careful and hold out for the vaccine…
I would think there is definitely some risk considering the impact of COVID that we know… there are many things we don’t know about COVID so the best advice would be to try & stay healthy as best as possible taking precautions until vaccinated & given the ok… I don’t think anyone wants to really catch it anyway as again we don’t know how this can affect any of us in 10 years time… God bless!