Hello, not trying to leave out the males but unfortunately this is not something that males can help with. I posted last year about pain during menstrual cycles, that how I knew mine had grown back. I had an embolization in October 24, the pain after was different then the first, it triggered the CRPS again, and I had deeper pain than I had the first time around in my ankle. Sort of felt like I had cement in my joint. Anyway, two months post op, Dr. Rosen ordered a repeat MRI, problems with insurance delayed me getting it, it’s scheduled for next week. But I’m starting to have pain during my cycle again, really intense pain. I’ve had CRPS for years since the first embo, and this is different, it’s deep, like a balloon inflating with no space to grow in my muscle. So my question is has anyone still had pain during their cycle even after it being embolized and it being supposedly completely occluded?
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Hi Jamie!
I haven’t had embolization but I’ve had sclerotherapy twice in 2023, and I also noticed my AVM growing back because it would get painful during my period. It also feels exactly how you’ve described, like an inflated balloon in the muscle, or my shoulder starts to feel very “full”. I’ve been waiting for an urgent MRI for 6 months now (stupid Canadian healthcare) to see how much my AVM has grown so I can get sclerotherapy again. I find that CBD creams can help with a bit of the pain as many other types of pain killers don’t seem to work for my AVM. Hope this helps a bit (:
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