Hello! It has been a couple of months since I’ve been very active. I have been patiently waiting for my LITT to finally be scheduled and working a lot. Luckily, I was able to finally get things straightened out and I will have my treatment mid November (excited to finally have it happening, but also very scared)! In the meantime, I have been having a hard time trying to control my seizures. I was originally put on Keppra and upped over time to 1000mg. It would help for a bit after upping the dose, and then I would fall back into having multiple seizures a week. I was switched to 100mg of Briviact. A lot of my side effects subsided/lessened, and I was feeling a lot better, but now I am having regular seizures again. I am starting to think this will not change until I have the surgery. I know stress is a trigger, but it has been hard to control after getting my diagnosis as well as losing a close family member to their own brain-related illness. My neurologist does not want to do anything with my dose and just see what happens. Should I just wait? I guess I’ve lived with it this long, and they are only focal seizures. I’m just feeling rather lost, I guess.
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I am currently on Keppra 1000mg twice a day, but have only had one seizure. I can only imagine how frustrating multiple a week can be, while patiently waiting for treatment. I do have one person I known who has seizures that are completely stress induced, but really hard to control at times as life has a way of throwing stress at us! I wish I had more to offer, and am thinking of you. Take Care, John.
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Good Luck! It will be okay….
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