I had an AVM in my stomach about 3 weeks ago. Lost 6 pts of blood and was very week for about 2 weeks. I am close to feeling "normal" now but I worry about another episode somewhere else. Does anyone have information about that likelihood?
Leslie, you can get a lot of info by typing gastro + AVM in the search bar on the top right of the page. You may also join the group “Gastrointestinal AVMs” by clicking on this link: http://www.avmsurvivors.org/group/gastrointestinal-avms
All the best!
We used to have a gastrointestinal AVM group, small as we were in size, we stayed in touch. I can not find our folks. Thanks to Leslie and Tim3, I did find you guys. SO thanks for posting. I am still trying to learn my way around the new website.
AAEM, don’t hesitate to post a question if you are having difficulty!
You will see a new tab at the top called FAQ. Our ModSupporter Meli has done a fab job on screen shots. Have a look at it!
And if all else fails, drop an email to ■■■■■■■■■■■■■■■■■■■■■■■■■■. We’re here to help.