I’m back, I’m not feeling too well, but I wanted to come home.
I guess medically I’m sound enough to come home and do out patient rehab.
Since the Angio/Embo I see double, my whole right side is numb and my speech is slurred. I have to talk very slow to be understood, Thank God I’m not paralyzed. I do need aid to walk, I have a walker and a cane, as time goes on I shouldn’t need either.
Embo gave me a stroke, it is making me nervous about craniotomy now. I’m still going to talk to Jefferson, if they have a less invasive suggestion that can get rid of the avm, I’ll probably try it.
They did tell me that it was a 5% chance that I could have a stroke, go figure, a 5% chance and it got me. I keep saying to myself if embo did that, what will craniotomy do ? Well, I’m thankful that I’m not paralyzed. I have to keep one eye closed or keep a patch on so that I can see. I know and all the docs and physical therapist say that I’m lucky, they have seen worst from embo. I’'m not on any meds right now.
I just got home this afternoon(May 1st, Friday), I have to get my strength back.
thanks for sending my t-shirt, my daughter told me that it came, I haven’t seen it yet.
I am so sorry for all of this, Ameenah. I just cannot believe the doctors said you were “lucky”?! This seems such an insensitive thing to say, considering!!! I don’t blame you for being worried about the craniotomy too. No wonder. PLEASE just rest. I hope that someone helps you with that housework and whatever needs to be done. So worried about you. Try to keep us updated or get your daughter to, she did a good job with a message when you were in hospital. Sending hugs to you.
Ameenahhhhhhhh,hugs my friend,been worried,you ok,reading your post and im so proud of you!! on your way to healing,im so sorry about the stroke,ILL BE PRAYING THAT HEALS!! GOD brang you back to us,we all have been praying and your daughter what great help she was letting us know how you are! rest ok,whats the next step…is it surgery,you already took such a big step,im so happy you are here with us,im my prayers,xxxooo Caroline
Great to hear you are home. Even if still struggling with the after effects of the embo/stroke, just being home in your own space must make you feel so good and so much more relaxed. It is a little crazy that you were that 5% chance. I mean really, they always tell you it is a possibility but it just seems like it never does happen! And I don’t know about the lucky part either…although I guess we are all lucky when we survive anything with these AVM’s. We do have to remember that it “could” be worse, that other people don’t make it, that these can be dangerous, etc. I know it doesn’t help to say “oh your lucky, you ONLY had a stoke!” and I don’t mean to minimize it at all. Just glad that you were lucky enough to make it through and home. Get some much needed rest so that you can heal up!
I’m glad the Tshirt made it to you!
Shalon
I’m so glad that you are home, Ameenah. You need to get as much rest as possible and it’ pretty hard to get that in a noisy hospital where you are constantly being poked with needles and IV machines start beeping just as you are finally falling asleep again! lol I am praying that you get back to full strength soon.
dearest ameenah, so sorry to hear the embo caused a stroke…but happy to hear that you are not fully paralysed and are able to recovery at home…you will not need walking aids for long you will regain your strength…you are a determind woman you will beat this…you will be back cleaning that house in no time…take it easy for now and be sure to get plenty of rest…i am praying for a quick and speedy recovery take care and keep us posted thinking of you all my love alicia xxxxx
Aneenah, so glad to hear from you! Sorry your are having a rough go right now. Recovery will come, it will take time. Rest now and try not to worry about anything. You’ll make it, I’m so sure. Wish I were closer so that you could tell me how to clean your house! Stay strong.
Hi everybody,thanks for the comments and the encouragement. I’m not doing any cleaning !! When I was in rehab they were having me fold and hang clothes. I told them it was a waste of time, I’m not doing anything that resembles house work when I get home LOL. I’m still facing surgery for this avm, we will see, I’m going to get another opinion and then I’ll make my decision. Talk to everybody soon, I can’t stay on as long as I use to.
Hi Jillian, my second opinion went well. I’m leaning towards gamma knife instead of surgery.
This avm has me scared out of my mind. I’m scared of craniotomy, more so since the embolization gave me a stroke and I’m scared of gamma knife because of necrosis and the fact that I can bleed at anytime while waiting for the avm to close, that is if it works. I’m just trying to rest my mind now.
Shalon, I did as you said, I let those dust bunnies pile up
As you all may already know I got Gamma Knife 7-22-09 instead of surgery, I’m still recovering from stroke and GK. The neurologist thinks that I will do well in time from the stroke. All he recommended when I saw him 8-21-09 was physical therapy. I should start a class called Muscle Builders sometime in September. It’s been over a month since I had GK, I’m not as tired, although I’m not sure if my tiredness was from GK alone. My head still feels the pressure, I believe that is from GK. I’m doing good, especially considering all that has happened.
And I don’t know about the lucky part either…although I guess we are all lucky when we survive anything with these AVM’s. We do have to remember that it “could” be worse, that other people don’t make it, that these can be dangerous, etc. I know it doesn’t help to say “oh your lucky, you ONLY had a stoke!” and I don’t mean to minimize it at all. Just glad that you were lucky enough to make it through and home. Get some much needed rest so that you can heal up!