Hi Richard,
I came to know that AVM which i think a congenital condition seems not a rare but a common desease though not sure but my Neurologist plus so many other doctors told me mine spinal at T6-T7 AVF a very rare condition can cause by some trauma or so.
I still wonder as i do had back injuries few times in sports as well a fall on my back from stairs which later after a month upon Xray show hairline fracture in lower back And same subside itself afterwards but nothing for sure And big thanks to the creator .
Anyway I like this avm group for sure with so many alikes.
Regards
Syed
I believe AVMs are generally congenital and the statistic I saw many years ago was something like 14 AVMs found per million population per year. If the median average lifespan of the US population is 78 years maybe that turns into 1100 per million population. That’s still rare: about one in a thousand.
If we look at the number of people in this forum with a brain AVM and the number of people with a spinal AVM, maybe 6000 of our members have a brain AVM and perhaps 300 have a spinal AVM. If those figures are representative of the general population, then that does make a spinal AVM among the rarest presentations.
We have two members here with Wyburn Mason Syndrome which is undoubtedly very very rare: the statistics I’ve read for Wyburn Mason Syndrome are about 1 in a 70 million population.
Most AVMs are believed to be congenital, though I remember someone reporting several years ago that dural arteriovenous fistulae (my own specific type of AVM) might be acquired rather than congenital, and there are a few dozen people here with a genetic trait that brings AVMs as part of the package. So it’s a complicated picture. Maybe spinal dural AVMs have an element of acquisition, as you’ve been told.
I think everyone here should consider themselves a bit on the rare side. None of these things would we wish upon anyone else, eh? Being rare often leads to much longer diagnosis times and, other than a place like this, much less ability to find others like ourselves with whom to share our burden.