I am 28 with a spinal avm. Feel very alone in my journey. Is anyone aware of any groups that meet around the NJ area? Thank you!
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i live in PA and grew up in NJ! i have a pelvic avm with 15 surgeries. id be happy to speak with you.
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Hi Mike - my guess is this is such a rare condition it might be tough to find a local support group. Many of us here are always available for direct conversation or - whatever form of support we can provide.
Mike