I just joined AVM Survivors and Ben's Friends and already I feel like one of the family. It is so nice to get welcome messages from all of you, so thanks!
I'm working with Ben (i.e. the creator) to spread the word about this site as well as all the Ben's Friends sites. We are hoping to reach more and more people and bring them into our family and support networks.
If you have any contacts in your local media (news, blogs, etc.) let me know. We would love to share our story with them.
Hello Haley and welcome to our family! Glad that you have already felt welcomed by our little group. I think that is THE thing that sets us apart from other support sites. We have wonderful members!!! Everyone is so supportive, helpful, and willing to share. It’s such a great place that people just can’t stop themselves from joining. We are irresistible!
Thanks for helping Ben spread the word on this and the other support sites. We’ve all felt the benefit first hand and are excited that more people will have the opportunity to experience this as well!
Shalon
Thanks Haley. I hope you feel that special community vibe we have here and want to share with others who are suffering/surviving/thriving with a rare medical condition.
