Update spinal fistula

Diagnosed 6 weeks ago with c3-t1 fistula. After my first visit with neurosurgeon today am going to be admitted to Nottingham hospital in a couple of days for another mri .. angiogram and then either Embolization or surgery. Extremely nervous as to what awaits. Is this normal procedure?

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Yes. I went to QMC as well.

The angiogram allows the consultant interventional radiologist to see the exact layout, size, etc of your arteries and any veins connected straight through. With an MRI you only get to look at a single slice at a time. Yes, you can animate the image by sliding up and down through the slices but it has to be a difficult way to see the layout of what is a 3D structure.

With the angiogram, they’ll do a local anesthetic and insert a very fine tube, a catheter, either at the top of your leg, into the femoral artery or at your wrist into the radial artery and then navigate it up to the area that they’re wanting to look at.

An iodinated contrast material is injected and it is visible on x-ray on a big TV screen above your head. The doc will inject it in a number of locations to see where the iodine flows to and effectively map out your AVM, compressing it into a flat image just of the illuminated blood vessels.

As the contrast is injected, it displaces the blood temporarily and the doc will tell you what to expect, “Hot flush” or “stars coming” or “You might feel a little nauseous” etc and sure enough, that’s what happens. Each flush lasts a few seconds but is enough for the doc to capture images that show the exact shape of the vessel that he or she is injecting into.

When you finish, the catheter is removed and the doc presses down hard on the wound to encourage it to seal. If I’m honest, this is uncomfortable. It’s like someone pressing hard on a bruise for a few minutes. And then it’s all done. If you’ve had an entry through your wrist, they’ll fit a compression band to keep the pressure on for a while. If they’ve gone in at your groin, you’ll be wheeled away to lie flat for a couple of hours while it heals enough to start moving around. You won’t be allowed to drive for 24 hours, I think.

There are risks associated with the procedure. The commonest perhaps is an intolerance of the iodinated contrast but they’ll sort you out if that’s the case. And there is a risk of having a stroke from the procedure. I’d say almost everyone here with a brain AVM has had an angiogram or three and I know of less than a handful who have had trouble with it.

The scans will allow them to then share that information in a Multidisciplinary Team Meeting (“MDT”) and agree between the diverse disciplines of neurosurgery which routes to recommend to you. I suspect it will also help them to categorise your risk and put you on the elective surgery schedule in the right place.

Hope that helps.

Richard

Hello,
Embolization or major surgery depends on your surgeons assesment but also depends avm size and location. Hopefully All will go best And
Wish you early recovery to Normalization. Even if they go for surgery it ll be under GA so you ll not feel much. Do update us pls
Regards
Syed

That’s exactly how my procedure went - angiogram and mri and then embolization surgery a few days later for my spinal AVF. Took a while to get my feet under me again but now I’m much better off than I was prior to the surgery. Sending strength and prayers.