Welcome & Help

FAQ FAQ about the AVM Community AVM 101 Included in this category are resources written by members for members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information Guidelines, Privacy, and Terms of Service What is different about a Ben’s Friend’s Patient Community. Our Privacy Statement and Terms of Use New User Help Are you a new user? Don’t worry we will guide you through the following videos. New Member Introductions New members, start your experience here. Introduce yourself and share your story about AVM. Let us welcome you.

Topic	Replies	Views	Activity
About the Welcome & Help category Welcome & Help	0	3984	August 12, 2016
Meeting to Find Answers New Member Introductions	17	206	October 14, 2026
Effects face in future even Avm was cured permanently.and precautions New Member Introductions	3	153	September 20, 2026
Hidden AVM - 14 years post diagnosis and left untreated New User Help stories	3	111	September 19, 2026
What a lonely condition… New Member Introductions	15	515	September 10, 2026
11 years post AVM Diagnosis New Member Introductions stories , symptoms , treatment , financial , general	3	214	September 6, 2026
Left temporal AVM rupture right after conscription New Member Introductions stories , treatment , general	5	129	September 2, 2026
Laser turned my pws darker New Member Introductions	3	81	August 23, 2026
New Here! AVM in the Thalamus New Member Introductions	7	244	August 14, 2026
I m dying… New User Help	4	320	August 13, 2026
Temporal Lobe AVM and reflections - my story so far New Member Introductions stories , general	12	308	August 13, 2026
Carotid sinus fistula New Member Introductions	11	84	August 12, 2026
Post embolisation hair loss - my hair recovery (pics and dates) AVM 101	53	5565	July 15, 2026
Left frontal lobe avm New Member Introductions general	4	149	July 4, 2026
New User Guide New User Help	2	2578	December 21, 2020
Diagnosis new...treatment soon: DAVF New Member Introductions stories , treatment	11	231	May 22, 2026
Diffused left parietal lobe avm. Can't have surgery, dealing with daily pain New Member Introductions symptoms , treatment , general	11	221	May 21, 2026
Antihistamines and AVM New User Help general	8	152	May 4, 2026
After 11 years, I'd like to share my story here New Member Introductions stories , general	15	445	April 26, 2026
A Letter From Your Brain AVM 101	34	13316	April 6, 2026
Introducing myself New Member Introductions	7	246	March 26, 2026
Newly discovered AVM New Member Introductions general	5	126	March 25, 2026
AVM on eloquent area on left side of brain New Member Introductions	10	210	March 24, 2026
My AVM Journey New Member Introductions	6	133	March 19, 2026
How to pick neurosurgeon? New Member Introductions treatment , general	4	155	March 9, 2026
AVM diagnosis hit me like a 10 ton bus... Literally New Member Introductions stories	21	371	January 30, 2026
Article about the Stem cell clinical trials going on for Stroke and TBI in USA AVM 101	47	2554	January 24, 2026
New member! New Member Introductions	7	170	January 20, 2026
Hair loss New User Help stories	0	53	December 31, 2025
To push for other testing or to accept and calm down? New User Help	6	191	December 20, 2025