Welcome & Help

FAQ FAQ about the AVM Community New Member Introductions New members, start your experience here. Introduce yourself and share your story about AVM. Let us welcome you. Guidelines, Privacy, and Terms of Service What is different about a Ben’s Friend’s Patient Community. Our Privacy Statement and Terms of Use AVM 101 Included in this category are resources written by members for members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information New User Help Are you a new user? Don’t worry we will guide you through the following videos.

Topic	Replies	Views	Activity
About the Welcome & Help category Welcome & Help	0	3976	August 12, 2016
Diagnosis new...treatment soon: DAVF New Member Introductions stories , treatment	9	97	May 9, 2026
Diffused left parietal lobe avm. Can't have surgery, dealing with daily pain New Member Introductions symptoms , general , treatment	10	116	May 6, 2026
Antihistamines and AVM New User Help general	8	97	May 4, 2026
After 11 years, I'd like to share my story here New Member Introductions general , stories	15	334	April 26, 2026
A Letter From Your Brain AVM 101	34	13175	April 6, 2026
Has anyone had an AVM in the neck? New Member Introductions	33	799	April 5, 2026
I m dying… New User Help	3	200	March 29, 2026
Introducing myself New Member Introductions	7	198	March 26, 2026
Newly discovered AVM New Member Introductions general	5	104	March 25, 2026
AVM on eloquent area on left side of brain New Member Introductions	10	152	March 24, 2026
My AVM Journey New Member Introductions	6	98	March 19, 2026
How to pick neurosurgeon? New Member Introductions treatment , general	4	112	March 9, 2026
New Here! AVM in the Thalamus New Member Introductions	6	184	March 9, 2026
Temporal Lobe AVM and reflections - my story so far New Member Introductions general , stories	9	165	February 25, 2026
Spinal Dural AVF victim - my story so far New Member Introductions stories	4	139	February 8, 2026
AVM diagnosis hit me like a 10 ton bus... Literally New Member Introductions stories	22	272	January 30, 2026
Article about the Stem cell clinical trials going on for Stroke and TBI in USA AVM 101	47	2484	January 24, 2026
New member! New Member Introductions	7	141	January 20, 2026
Hair loss New User Help stories	0	46	December 31, 2025
To push for other testing or to accept and calm down? New User Help	6	180	December 20, 2025
Numbness of skull following gamma knife New Member Introductions	5	164	December 2, 2025
Please share any advice New Member Introductions	6	162	November 17, 2025
Hair loss and recovery New User Help general , treatment , stories	9	209	November 17, 2025
DSA 3 month ago New Member Introductions	1	48	November 16, 2025
Micro avm or Dva? Dva exists? New User Help	3	76	November 10, 2025
AVM Rupture Survivor New Member Introductions treatment , stories	14	313	October 31, 2025
Just diagnosed.. awaiting Angiogram New Member Introductions	22	382	October 28, 2025
Laser turned my pws darker New Member Introductions	1	44	October 28, 2025
Post embolisation hair loss - my hair recovery (pics and dates) AVM 101	52	5394	October 18, 2025