Welcome & Help

FAQ FAQ about the AVM Community AVM 101 Included in this category are resources written by members for members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information Guidelines, Privacy, and Terms of Service What is different about a Ben’s Friend’s Patient Community. Our Privacy Statement and Terms of Use New User Help Are you a new user? Don’t worry we will guide you through the following videos. New Member Introductions New members, start your experience here. Introduce yourself and share your story about AVM. Let us welcome you.

Topic	Replies	Views	Activity
About the Welcome & Help category Welcome & Help	0	3981	August 12, 2016
Meeting to Find Answers New Member Introductions	14	117	September 24, 2026
Effects face in future even Avm was cured permanently.and precautions New Member Introductions	3	105	September 20, 2026
Hidden AVM - 14 years post diagnosis and left untreated New User Help stories	3	73	September 19, 2026
What a lonely condition… New Member Introductions	15	503	September 10, 2026
11 years post AVM Diagnosis New Member Introductions stories , symptoms , treatment , financial , general	3	206	September 6, 2026
Left temporal AVM rupture right after conscription New Member Introductions stories , treatment , general	5	125	September 2, 2026
Laser turned my pws darker New Member Introductions	3	80	August 23, 2026
New Here! AVM in the Thalamus New Member Introductions	7	239	August 14, 2026
I m dying… New User Help	4	315	August 13, 2026
Temporal Lobe AVM and reflections - my story so far New Member Introductions stories , general	12	306	August 13, 2026
Carotid sinus fistula New Member Introductions	11	76	August 12, 2026
Post embolisation hair loss - my hair recovery (pics and dates) AVM 101	53	5547	July 15, 2026
Left frontal lobe avm New Member Introductions general	4	141	July 4, 2026
New User Guide New User Help	2	2539	December 21, 2020
Diagnosis new...treatment soon: DAVF New Member Introductions stories , treatment	11	226	May 22, 2026
Diffused left parietal lobe avm. Can't have surgery, dealing with daily pain New Member Introductions symptoms , treatment , general	11	213	May 21, 2026
Antihistamines and AVM New User Help general	8	149	May 4, 2026
After 11 years, I'd like to share my story here New Member Introductions stories , general	15	424	April 26, 2026
A Letter From Your Brain AVM 101	34	13308	April 6, 2026
Introducing myself New Member Introductions	7	240	March 26, 2026
Newly discovered AVM New Member Introductions general	5	124	March 25, 2026
AVM on eloquent area on left side of brain New Member Introductions	10	206	March 24, 2026
My AVM Journey New Member Introductions	6	127	March 19, 2026
How to pick neurosurgeon? New Member Introductions treatment , general	4	151	March 9, 2026
AVM diagnosis hit me like a 10 ton bus... Literally New Member Introductions stories	21	356	January 30, 2026
Article about the Stem cell clinical trials going on for Stroke and TBI in USA AVM 101	47	2539	January 24, 2026
New member! New Member Introductions	7	168	January 20, 2026
Hair loss New User Help stories	0	51	December 31, 2025
To push for other testing or to accept and calm down? New User Help	6	190	December 20, 2025