Welcome & Help

New Member Introductions New members, start your experience here. Introduce yourself and share your story about AVM. Let us welcome you. FAQ FAQ about the AVM Community Guidelines, Privacy, and Terms of Service What is different about a Ben’s Friend’s Patient Community. Our Privacy Statement and Terms of Use AVM 101 Included in this category are resources written by members for members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information New User Help Are you a new user? Don’t worry we will guide you through the following videos.

Topic	Replies	Views	Activity
About the Welcome & Help category Welcome & Help	0	3970	August 12, 2016
New Here! AVM in the Thalamus New Member Introductions	4	113	January 13, 2026
New member! New Member Introductions	6	103	January 11, 2026
Has anyone had an AVM in the neck? New Member Introductions	30	599	January 8, 2026
Hair loss New User Help stories	0	36	December 31, 2025
To push for other testing or to accept and calm down? New User Help	6	146	December 20, 2025
Numbness of skull following gamma knife New Member Introductions	5	122	December 2, 2025
Please share any advice New Member Introductions	6	147	November 17, 2025
Hair loss and recovery New User Help general , treatment , stories	9	194	November 17, 2025
DSA 3 month ago New Member Introductions	1	40	November 16, 2025
Micro avm or Dva? Dva exists? New User Help	3	67	November 10, 2025
AVM Rupture Survivor New Member Introductions treatment , stories	14	266	October 31, 2025
Just diagnosed.. awaiting Angiogram New Member Introductions	22	345	October 28, 2025
Laser turned my pws darker New Member Introductions	1	38	October 28, 2025
Post embolisation hair loss - my hair recovery (pics and dates) AVM 101	52	5151	October 18, 2025
New to this group! New Member Introductions	13	344	October 10, 2025
Bleomycin Electrosclerotherapy New Member Introductions	9	233	October 5, 2025
My 12 year old had a severe AVM episode New Member Introductions	12	437	September 17, 2025
Hello, new to the community. Does anyone have experience with a spinal avm? New Member Introductions treatment , stories	8	180	September 14, 2025
How Do I Start A Topic? FAQ	4	38	September 14, 2025
Tough situations New Member Introductions	32	2283	September 5, 2025
Introduction New Member Introductions	16	279	September 3, 2025
13 year old, spinal AVM bled into brain New Member Introductions	17	368	September 1, 2025
I have had AVM since I was 12 years old New User Help	4	149	August 9, 2025
Gammaknife in 3 days New User Help general , treatment , stories	10	292	August 4, 2025
Dealing with my son having servere AVM New User Help	6	152	August 3, 2025
New AVM Diagnosis: Supraclavicular fossa, near brachial plexus New Member Introductions	2	77	July 30, 2025
Recently Diagnosed with Left Occipital AVM New Member Introductions	12	274	July 29, 2025
New Here, Just Saying Hi New Member Introductions	4	226	July 20, 2025
Difficult decision! Dr Lawton,Dr Abla and Dr Gupta New User Help	23	448	July 17, 2025