Welcome & Help

New Member Introductions New members, start your experience here. Introduce yourself and share your story about AVM. Let us welcome you. FAQ FAQ about the AVM Community AVM 101 Included in this category are resources written by members for members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information Guidelines, Privacy, and Terms of Service What is different about a Ben’s Friend’s Patient Community. Our Privacy Statement and Terms of Use New User Help Are you a new user? Don’t worry we will guide you through the following videos.

Topic	Replies	Views	Activity
About the Welcome & Help category Welcome & Help	0	3972	August 12, 2016
Temporal Lobe AVM and reflections - my story so far New Member Introductions general , stories	4	9	February 16, 2026
AVM on eloquent area on left side of brain New Member Introductions	1	48	February 11, 2026
Spinal Dural AVF victim - my story so far New Member Introductions stories	4	106	February 8, 2026
Has anyone had an AVM in the neck? New Member Introductions	32	671	February 1, 2026
How to pick neurosurgeon? New Member Introductions treatment , general	2	52	January 31, 2026
AVM diagnosis hit me like a 10 ton bus... Literally New Member Introductions stories	22	211	January 30, 2026
Bleomycin Electrosclerotherapy New Member Introductions	11	268	January 27, 2026
Article about the Stem cell clinical trials going on for Stroke and TBI in USA AVM 101	47	2415	January 24, 2026
Newly discovered AVM New Member Introductions general	3	56	January 23, 2026
New member! New Member Introductions	7	128	January 20, 2026
New Here! AVM in the Thalamus New Member Introductions	4	134	January 13, 2026
Hair loss New User Help stories	0	42	December 31, 2025
To push for other testing or to accept and calm down? New User Help	6	162	December 20, 2025
Numbness of skull following gamma knife New Member Introductions	5	131	December 2, 2025
Please share any advice New Member Introductions	6	156	November 17, 2025
Hair loss and recovery New User Help general , treatment , stories	9	201	November 17, 2025
DSA 3 month ago New Member Introductions	1	41	November 16, 2025
Micro avm or Dva? Dva exists? New User Help	3	67	November 10, 2025
AVM Rupture Survivor New Member Introductions treatment , stories	14	281	October 31, 2025
Just diagnosed.. awaiting Angiogram New Member Introductions	22	361	October 28, 2025
Laser turned my pws darker New Member Introductions	1	39	October 28, 2025
Post embolisation hair loss - my hair recovery (pics and dates) AVM 101	52	5227	October 18, 2025
New to this group! New Member Introductions	13	359	October 10, 2025
My 12 year old had a severe AVM episode New Member Introductions	12	444	September 17, 2025
Hello, new to the community. Does anyone have experience with a spinal avm? New Member Introductions treatment , stories	8	181	September 14, 2025
How Do I Start A Topic? FAQ	4	39	September 14, 2025
Tough situations New Member Introductions	32	2289	September 5, 2025
Introduction New Member Introductions	16	290	September 3, 2025
13 year old, spinal AVM bled into brain New Member Introductions	17	378	September 1, 2025